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When Children Die: Improving Palliative and End-Of-Life Care for Children and Their Families   

When Children Die: Improving Palliative and End-Of-Life Care for Children and Their Families


Institute of Medicine Marilyn J. Field Richard E. Behrman

Hardcover. National Academies Press 2003-01.
ISBN 9780309084376
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Förlagets beskrivning

The death of a child is a special sorrow. Regardless of the circumstances,
a child's death is a life-altering experience. Except for the child who dies
suddenly and without forewarning, physicians, nurses, and other medical
personnel usually play a central role in the lives of children who die and
their families. At best, these professionals will exemplify "medicine with a
heart". At worst, families' encounters with the health care system will leave
them with enduring painful memories, anger and regrets. "When Children Die" examines what we know about the needs of these children
and their families, the extent to which such needs are - and are not - being
met, and what can be done to provide more competent, compassionate and
consistent care. The book offers recommendations for involving child patients
in treatment decisions, communicating with parents, strengthening the
organization and delivery of services, developing support programmes for
bereaved families, improving public and private insurance and training health
professionals. It argues that taking these steps will improve the care of
children who survive as well as those who do not - and will likewise help all
families who suffer with their seriously ill or injured child. "When Children Die" examines what we know about the needs of children who
die and their families, the extent to which such needs are - and are not -
being met, and what can be done to provide more competent, compassionate and
consistent care.



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When Children Die: Improving Palliative and End-Of-Life Care for Children and Their Families
When Children Die: Improving Palliative and End-Of-Life Care for Children and Their Families
  
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